First and foremost, the transition from stay-at-home-mom to working parent has been HARD!! Wow -- I can't believe how crazy it has been to try and get used to being both teacher and mom. I don't know how people do it!! I had my school routine set for the past eight years -- now my entire routine has changed and I am trying to find my new groove.
Just as I was settling into our new routine, I received a call that it was going to change yet again.
After many weeks of waiting, I was fortunate enough to receive approval from my insurance company for coverage of the Remicade treatment for my Crohn's disease. The ball started rolling and I received a call from the specialized pharmacy. They spent quite awhile going over the in's and out's of the treatment and answering any questions I had.
The first three doses of the infusion are given close together and are called the 'loading doses.' I will go to a clinic and be hooked up to a machine for four hours -- much like a dialysis treatment. Because the whole intention of the infusions are to block my immune system, I am going to be quite vulnerable to any illness -- which means school is too germy a place for me to be. Sooooo -- I was told, without much warning, that I would need to take a six week leave of absence from school. Jeesh!! The year had just started and the idea of leaving my class stressed me out completely. However, I really, really, need this treatment to work -- so I am taking the time off to ensure that I am rested and do my best to stay clear of any germs that might interrupt my treatment.
My leave of absence officially started today. I have to admit that I am grateful for the break. Feeling sick almost every day, going to doctor appointments two to three days a week, being hospitalized for four days at a time and being there for Maelyn has me completely stretched to the limit. I am looking forward to doing my best to feel better and kick this Crohn's into remission.
Stay tuned for many updates over the next six weeks as I catch up on the many, many posts that are already written in my head and simply need to be transferred to virtual paper. :)
2 comments:
Sending you many good thoughts and prayers, Jan!
Hang in there, friend, we're thinking about you!!!!
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