Tuesday, October 11, 2011

Update...

Some of you may have noticed my absence from the blogging world over the past few weeks. The absence was not intentional and I have missed my bloggy friends and writing outlet! Let me catch you up on what has been going on around here lately...

First and foremost, the transition from stay-at-home-mom to working parent has been HARD!! Wow -- I can't believe how crazy it has been to try and get used to being both teacher and mom. I don't know how people do it!! I had my school routine set for the past eight years -- now my entire routine has changed and I am trying to find my new groove.

Just as I was settling into our new routine, I received a call that it was going to change yet again.

After many weeks of waiting, I was fortunate enough to receive approval from my insurance company for coverage of the Remicade treatment for my Crohn's disease. The ball started rolling and I received a call from the specialized pharmacy. They spent quite awhile going over the in's and out's of the treatment and answering any questions I had.

The first three doses of the infusion are given close together and are called the 'loading doses.' I will go to a clinic and be hooked up to a machine for four hours -- much like a dialysis treatment. Because the whole intention of the infusions are to block my immune system, I am going to be quite vulnerable to any illness -- which means school is too germy a place for me to be. Sooooo -- I was told, without much warning, that I would need to take a six week leave of absence from school. Jeesh!! The year had just started and the idea of leaving my class stressed me out completely. However, I really, really, need this treatment to work -- so I am taking the time off to ensure that I am rested and do my best to stay clear of any germs that might interrupt my treatment.

My leave of absence officially started today. I have to admit that I am grateful for the break. Feeling sick almost every day, going to doctor appointments two to three days a week, being hospitalized for four days at a time and being there for Maelyn has me completely stretched to the limit. I am looking forward to doing my best to feel better and kick this Crohn's into remission.

Stay tuned for many updates over the next six weeks as I catch up on the many, many posts that are already written in my head and simply need to be transferred to virtual paper. :)

2 comments:

mosey (kim) said...

Sending you many good thoughts and prayers, Jan!

Lianne said...

Hang in there, friend, we're thinking about you!!!!